Who We Are, and Why We Do This

The idea of a fundraiser that is based around Cornhole tournaments is the result of Caleb’s parents feeling helpless and wanting to do something unique to help their son and the rest of the dystonia community.  Of course, running a fundraiser is a major undertaking and a lot of help has been needed.  Fortunately, or unfortunately depending on how you look at it, Caleb is not alone in battling dystonia, nor is his family alone in wanting to help.

The Toss4Dystonia is organized by a committee of local friends and family who are each personally affected by dystonia, either themselves or the people they love.  Members of the Toss4Dystonia organization committee are also members of the Dystonia Medical Research Foundation (DMRF).  The Lewis’, a Rochester family who’s son, Ben, is featured as a Local Inspiration, are volunteers on the DMRF Board of Directors.  They have been active with the DMRF for 30 years.  The Metherell’s are part of the newly formed Community Leadership Council (CLC) of volunteers at the DMRF.  The CLC members are committed to furthering the objectives of the DMRF by working tirelessly toward increased awareness and fundraising.  Volunteering at all levels is necessary so that the DMRF can continue to advocate for its community and advance toward better treatments, and ultimately a cure.

About the DMRF

Founded in 1976, the DMRF is a 501(c)3 organization dedicated to serving all people with dystonia and their families. Since its inception, the DMRF has grown from a small, family-based foundation into a dynamic, membership-driven organization led by a Board of Directors and network of volunteers with personal connections to dystonia. Because dystonia hits so close to home for our directors and volunteers, the DMRF leadership is motivated by an unrelenting drive to find a cure and an unwavering commitment to serving people affected by dystonia.

Check out the video below for a message to you, the person reading this website page right now.